On September 10, I’ll be cycling in the RBC Gran Fondo in Vancouver, BC, Canada to once again raise funds for the Riaan Research Initiative to find treatments for Cockayne Syndrome. This #ride4riaan is a 70 mile route from Vancouver to Whistler and it’ll involve the most climbing I’ve ever done. To help save Riaan and other kids like him, please support my ride today with a donation.
In March of this year, little Riaan was diagnosed with having Cockayne Syndrome, a very rare genetic disease for which there is no cure (yet). Kids who are diagnosed don’t have very long to live. I’m riding to raise funds for the research that will give Riaan and kids like him a chance at life.